School Support – June 2016

The girls’ school has been a huge support system through out all of the ups and downs over the past three years.
Fund raisers, quiet times, bake sales, Runs, book drives…. And personal one on one support…
In Memory of Paytan the school has planted purple flowers at the front garden.
Words don’t come close to expressing my families gratitude and love for all the kids teachers, and their families….
…. But THANK YOU SO VERY MUCH!!!

 

 

Here are some pics from this past year.
…”we planted purple flowers in the front garden in memory of Paytan! “

   

 

June 16 2016

Well… Sitting in the van with the windows down… Waiting to go into the dr. apt.. (Having arrived a bit early)
AND….Today is the VERY FIRST day I have heard a person (lady) read out loud your saying…”it’s only a bad day if you say it is”….
…To her daughter…. And comment … Loud enough for me to hear…..
“I SAY ….IT IS A BAD DAY”….
At first I felt upset, that she would read that and not understand that you wrote it… And then realize that she really had NO idea that you wrote that… And even more important (to me) WHY you wrote it.
Then I felt sad…. That this person would have such a sad out look on her life, that she would be expressing it to her daughter… And to me…. (Cuz I think I was more the intended person to hear her comment).
So, as she passed by me, staring right at me…. I smiled, said pleasantly …”hello”… And that “I hoped her day would become a brighter, better more positive day going forward”….. Her daughter smiled back at me…. And said “thank you”.
Life is definitely what you make of it.
Negativity will always flatten you if you let it.
I choose like you, Paytan & your sister, Hailey…. to have “HAPPY DAYS”.
💕❤️

My baby-girl… ❤️❤️❤️ – Aug 4 2016

My baby-girl… ❤️❤️❤️
What I would give to see your beautiful face smile and hear your giggles, hold your hand and hear you say Mom. I miss our morning snuggles… Our quiet time thoughts together. I miss your hugs and kisses. I miss thinking at night as I fell asleep what adventure you and your sister were going to explore the following day.
I miss the sharing of the excitement leading up to and then experiencing an new adventure with you.
My tears fall from the empty spot in my heart from missing your presence here.

This time last year, we were getting ready to send you and Hailey off to camp.
I was soooo afraid to let you go . I cried inside when Marilyn said there was a spot open for you guys.
As afraid as I was to send you off for the week… I was sooo very excited for you both to have the chance to experience camp. You both accomplished so much when you were there!
I see so much of you in your sister.
You truly were the best big sister ever.


You ALWAYS make and made my heart smile big!

My tears fall from the empty spot in my heart from missing your presence here.

 

 

Where do your thoughts go?

Where do your thoughts go when you stop to reflect over your day?
Do you stop to remember a kind word spoken to you?
Or do you remember giving someone a smile to brighten their day?
Or, do you just dwell on all the wrongs that were thrown at you today?
How many times you were upset about something, frankly not worth being upset about?
But that’s where your thoughts lay….
Now…. Close your eyes for a moment…. And pretend to be small again, small enough to depend upon others, but big enough to think you could conquer the world.
Right there!
Now…. Think of your worst fear…the thing or event that stops your heart and takes your breath away…. And magnify it by 1000!
Are you paralyzed?
Is your voice the echo of silent screams?
STOP!
Try to push it away… Away, deep inside.. So you can be pleasant as someone is interacting with you and telling you all will be ok…as they begin to shove cold, steel, needles into your small veins. You can hear the sounding beeps of the machine getting ready to pump toxic chemicals into your tiny body.
Wait! You scream, as your little arm at the site begins to swell and burn as the chemo leaks into the tissue that encases your now collapsed vein, only to hear the words, ” we have to do another IV”.
And … One point you remember feeling exhausted and sore… You close your eyes only to open them… Tied to a bed with wires and tubes attached to almost every part of you body.
You start to gag… But can’t move your arm at all to pull this massive hard breathing tube lodged in your mouth and throat.
Again, they pump you full of medicine to keep your body free from pain.
Your days are twisted together with your nights, dreams and nightmares….”
“what is real? Where are you?”, goes racing through your mind.
“Momma” you scream…only to not recognize the one face that calms your racing fear.

Keri McEwen
Oct 2014 Sitting in ICU CHEO… After her first Code

February 18, 2016

I’d to share a moment with you guys…
Just down the road from CHEO… On the way to the Queensway… There is a road called “Freedom”.
Paytan noticed the sign on our first drive home… And started to cry. She asked me to turn around, and pull onto the street. I did and parked facing the street sign… She sighed and asked me to play the song “Home”, by American Authors”… I sat giving her a huge hug… Listening to her sing along. My eyes filled with tears as she said “I love you, Mommy. To the moon and back. Forever and always”

**********

I’ve got these letters tattooed on my arm
That remind me each second of where I come from
And the long hard road to get me back home

Back to my mama who raised me up right
And back to my lady who I held every night
It’s a long hard road trying to get home

I’d been gone now for too long

I’m not trying to stop a hurricane
I’m not trying to shake the ground below
I’m just trying to find a way to make it back home

I’m not trying to part the ocean waves
I’m not trying to overthrow the throne
I’m just trying to find a way to make it back home
I’m just trying to get home

I’ve got this image engraved in my mind
Of a light that I had in a whole different time
It still breathes and lives at the end of the road

I’ve seen mountains and valleys through my missing days
But I never once parted with how you begged me to stay
I will run down that long hard and treacherous road to get home

I’ve been gone for so long
But my heart it carries on
As it pounds like a drum
On my journey back home

I’ve been gone for so long
But my heart it carries on
I won’t give up

I’m just trying to get home

American Authors “Home”

February 26 2016

After last weeks successful book fair, John Young School Council is donating almost $600 worth of books in Paytan’s name to the library at CHEO. The photo I attached are labels that Kirsten Farago created that are being placed in all of the books. If the flowers look familiar, that is because I replicated line for line the drawing Paytan did for her Mom when she was six

January 19, 2016

My dearest Paytan….
You were a gift from God that I cherished every single day. I waited longer to have you than I had the honour of having you with me.
My heart is in a million pieces … And yet I have to find the beats to carry your sister through the darkness.
My screams are silent as I can’t even find the words to express my devastation of loosing you.
My thoughts are like the swirling whirl of water pulling me under the helplessness I have, as not to have been able to make it all better.
I’ve lost my breath, and feel faint and sick at the same time.
My memories are surrounded by your smiles and love.
I have no words to say how much you meant to me.
Mommy